1st International Rare and Paediatric Disease Conference - Virtual Event 18-19/11/2021

 

Organising Committee

Dimitrios Athanasiou, World Duchenne Organisation (WDO), European Patient Forum (EPF), 95 Rare Alliance

Adriana Ceci, European Paediatric Translational Research Infrastructure (EPTRI), Gianni Benzi Foundation, member of CVBF

Panos Macheras, ATHENA, Athena Research Center

 

Program Committee

·  Mary Adamopoulou, 95 Rare Alliance Greece, EUPATI

·  Annagrazia Altavilla, TEDDY European Network of Excellence for Paediatric Research

·  Donato Bonifazi, Consorzio per Valutazioni Biologiche e Farmacologiche (CVBF), European Paediatric Translational Research Infrastructure (EPTRI)

·  Virginie Hivert, EURORDIS Rare Diseases Europe

·  Daria Julkowska, European Joint Programme on rare diseases (EJPRD)

·  Martine Kremer-Dehlinger, ICON, European CRO Federation (EUCROF)

·  Emmanuel Mikros, ATHENA - Research and Innovation Center in Information, Communication and Knowledge Technologies, European Paediatric    Translational Research Infrastructure (EPTRI)

·  Elvina Sakellariou, Duchenne Data Foundation (DDF)

·  Maurizio Scarpa, European Reference Network for Hereditary Metabolic Disorders (MetabERN)

Important Dates

Conference Dates: 18-19/11/2021

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